Aid is participating in a study to measure how well children with portal vein thrombosis (blood clot) use their calories. It's proposed these special kiddo's waste a ton of calories due to lack of blood flow. Aidan is only the 12th person to studied over a 5 year period. For the study we have to collect all Aid's poop for 3 whole days...lucky us! Afterwards the lab can burn the poop to measure how many calories are wasted and compare it to how many calories Aid has eaten over the 3 days. So when you have a bad day at work think of whoever works at that lab!
After the study we went down and met with Dr. Superina who will be performing the surgery. He is very nice and made sure we had plenty of time to ask questions and discuss our "plan of action". As it stands now we are due in pre-op 7:15 on Monday morning. They will start the surgery round 8:30 and begin placing his lines. Sometime around 10am they will begin dissecting down to and into the liver to find the portal vein. If the vein is good they will move on and harvest a jugular vein from Aid's neck. If all goes well the surgery should take 6-8 hours. Aid will be admitted to the PICU and will most likely stay there for a few days. We also met the Pulmonary team today who are very on top of the upcoming surgery.
Aid is a little overwhelmed after our long day today but came home to an extactic sister and big snuggles from Grammy around 4:00. If all goes well tomarrow, we will visit the Childrens museum and hopefully the aquarium and the Sears tower on Sunday. May as well wear the kiddo out before his big day on Monday! With any extra luck or time I will make sure and add some pics!
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